Our Health. Our Records. Our Right.

Managing our long-term health is our responsibility. Technology can help, but we must first own our data.

Why This Matters Now

Millions of patients are asking AI about their health but AI doesn’t know their medical history, lab results, or their lived experiences.

AI tools are improving rapidly, and our usage of them related to our health is increasing. However, we can't get the most benefits from AI because we don’t own the data that defines us. Every time we visit a doctor, take a medication, run a lab test, or track a heartbeat, we generate valuable information about our health.

Owning our health data isn’t a privacy issue. It empowers us to make better health decisions.

We Are Responsible for Our Health and Wellbeing

Technological advancements are transforming healthcare. Advancements in AI are enabling a shift from reactive, event-driven medicine into a future of proactive, personalized care. AI can support us both before and after diagnosis, helping us understand our health, take action earlier, make better decisions, and recover with more confidence.

We believe patients must own their health data to get the most from this transformation.

We Need Your Voice

We’re building a community of patients, clinicians, technologists, and privacy-minded humans who believe healthcare should be built around the individual — not the institution.

Start The Survey

Take a Short Survey

We’re running a global survey to understand:

How people use AI for health questions
If they trust LLMs today
Whether they wish they could give AI more context
Appetite for personal data ownership & sovereignty
What would make people feel safe + empowered

Your insights will shape the next generation of patient-owned health technology.

About Us

OwnMyData.Health is a research initiative by HealthVault AI. Health Vault AI is an open-source, community-driven initiative focused on removing the technical, cultural, and institutional barriers that limit access to health information, so that our health data becomes securely available and usable by all patients, clinicians, and researchers.

Our mission is to give every individual control of their health data through free (not as in free beer), open-source, community-built technology.